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Multiple Myeloma

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Multiple Myeloma Discussions

TypeSubjectRepliesStartedRating
Discussion started Member
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MGUS
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Not sure I'm signing in the right place -- maybe someone can redirect me if possible.I was diagnosed in 2000 with MGUS.  I see other people have length...
305/15/08 Message Rating
Discussion started Caregiver
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Questions about iga levels
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I feel kind of hesitant to post this when I see so many of you who are in full battle with this illness but its kind of driving me nuts with anxiety and I can&#...
305/13/08 Message Rating
Discussion started Patient
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Nexavar - anyone using this d...
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Memorial Sloan-Kettering investigators are also studying sorafenib (Nexavar®) for use in multiple myeloma patients with abnormal kidney function. An oral mu...
305/12/08 Message Rating
Discussion started Patient
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Fucoidan - is anyone taking th...
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Hi All --I've been doing a fair bit of reading about Fucoidan lately and was wondering if there is anyone on this board who is using it?  How does one ...
405/12/08 Message Rating
Discussion started Caregiver
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conflicting information
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My mom was diagnosed with MM just a few weeks ago.  I have five siblings, and each of us seems to be getting different information from doctors at her hosp...
1905/09/08 Rated by 1 members
Discussion started Caregiver
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Bloodwork, IGA and reading Lab...
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Hi all. Was wondering if anyone could help me a bit with translating CBC lab reports and answer a question about MM - IGA. My father has Multiple Myeloma, IGA. ...
305/08/08 Message Rating
Discussion started Patient
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Stem Cell Transplant
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I will be undergoing autologous stem cell transplant and chemo therpy within the next thirty days at Audie Murphy V.A. in San Antone. I live alone and am s...
405/06/08 Message Rating
Discussion started Caregiver
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Revlimid and Decadron followin...
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Hello Everyone,I was wondering if anyone is taking Revlimid/Dex for maintenance following stem cell transplant. My husband is on it and he is feeling really bad...
105/02/08 Message Rating
Discussion started Caregiver
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Revlimid/Dexamethasone
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This is for Jan (webeenthere) My husband had plasmacytoma and went into multple myeloma inMarch of 08,  We just finished the revlimid, 28 days with de...
505/01/08 Message Rating
Discussion started Caregiver
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Dad's birthday
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From Anna, Hi all, Today is Dad's 65th birthday. Ten years ago didn't think he would reach this birthday. Your friend,Anna 
505/01/08 Message Rating
Discussion started Caregiver
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Michael Gearin-Tosh
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I am sure you have all read his "Living Proof" but what do you think about it? I have to say, his way is extremely close to my heart and I shall advoc...
205/01/08 Message Rating
Discussion started Caregiver
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melphalan-based transplant
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can it be done after revlimid-dex-dox?
405/01/08 Message Rating
Discussion started Caregiver
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Blood transfusions
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I am new to this web site but have found it very helpful.  My wonderful husband was diagnosed with multiple myeloma (Stage 3) in January 08.   He...
304/27/08 Message Rating
Discussion started Patient
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Whole Body Hyperthermia?
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I am a 39 year old woman, who had a bone marrow/blood stem cell transplant back in 2002. I am now in complete relapse, have no insurance to cover another transp...
104/23/08 Message Rating
Discussion started Caregiver
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Kidney cancer may be linked to...
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NEW YORK (Reuters Health) - For the first time, researchers have evidence of an association between renal cell carcinoma and multiple myeloma, a type of blood...
404/23/08 Message Rating
Discussion started Patient
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disability insurance
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Not sure if this is in the correct place but here goes. I have multiple myeloma and collecting SSD and group disability insurance. I need to know if my myeloma ...
504/22/08 Message Rating
Discussion started Caregiver
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acne on face from dex /revlimi...
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My mother has been on Revlimid and Dex.for a month, She developed a horrible rash on her face. (like acne) The doctor took her off dex and revlimid un...
104/21/08 Message Rating
Discussion started Patient
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Revlimid and Kidney Stones?
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I have been on Revlimid for over 20 months now with fantastic results, however I recently developed three kidney stones which had to be 'blasted' to rem...
204/21/08 Message Rating
Discussion started Caregiver
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me of all people "be positive"
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My brother who has been DX in november with stage 3 MM with chromosome issues..IGg kappa and  beta 2 microglobulin level of 13.2 ..things were moving SO fa...
104/20/08 Message Rating
Discussion started Caregiver
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Plasmacytoma and MGUS
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Can you have both?  My mom was diagnosed with an isolated plasmactyoma with all tests being negative (skeletal profile, MRI, bloodwork, etc.) but then got ...
304/20/08 Message Rating
Discussion started Patient
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symptoms of end stage multiple...
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can anyone give me information on symptoms  regarding  ed stage of MM
404/16/08 Message Rating
Discussion started Member
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superficial bone pain
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Hello everyone!I'm so thankful for this site where I can really learn a lot from all of you nice people. I was diagnosed with MGUS kappa in November 2007. I...
804/15/08 Message Rating
Discussion started Caregiver
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The Kanzius Machine: A Cancer ...
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I have not had time to fully review the text or video, but it was a story recently covered by CBS's 60 Minutes, so must have some degree of credibility. C...
504/15/08 Message Rating
Discussion started Member
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mgus symptoms
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Hello, I have not posted any message for a while, but are always learning from all of you. I have found this site very useful. I have some questions about some ...
104/14/08 Message Rating
Discussion started Caregiver
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Dad going on 4th round of chem...
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Hi all, Short update. Dad will be doing a 4th round of chemo. His protein count is down a little but not enough.   Your friend, Anna
304/14/08 Message Rating
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